SACRAMENTO (KPIX) – DNA is back in the spotlight, cracking cold cases. But questions are being raised after the state spent decades collecting the DNA of infants without parents realizing it.

California has been collecting newborn blood samples since 1983.

Many parents were shocked to hear their children’s blood is being stored in a state database, and possibly even sold to outside researchers. Pricking the toes newborns, to test their blood for certain disorders. The remaining blood becomes “property of the state,” and could be shared with outside researchers.

“I feel like that’s something that should have been discussed with us, in person, not on whatever page in a document,” said one mom.

The state tells new parents about it, hidden on page 13 of a 14-page pamphlet, and California can hold onto those samples indefinitely.

“These samples are needed to create new testing technology,” said Fred Lorey.

Lorey used to run California’s Genetic Disease Screening Program and says the blood spots are de-identified.

That means no name or medical information, just the blood and a number.

“There is no such thing as de-identified DNA,” said Jamie Court, head of Consumer Watchdog. Court points to the arrest of Joseph DeAngelo, the suspected East Area Rapist, reportedly identified when his DNA was matched with a profile on a public ancestry site.

“There should be a state audit of what’s happened with this program and the types of uses for this DNA, and there should be a recommendation to the legislator,” Court added.

California is not saying exactly what happens with these blood samples after reaching the state’s bio-lab, but parents can request the state destroy their child’s blood samples.

“The burden’s on you, a sleepless new mom, to remember to call them, and then follow up,” said another mom.

Nearly every state requires the blood tests. But the difference is other states destroy it, some after a year.

California is one of four states storing blood spots indefinitely in a state-run “bio-bank”.

[H/T CBS San Francisco]

Comments (6)
  1. Don McCoy says:

    Funny how the government seems to be able to do whatever they like. P1ss on We the People…

  2. “Brave New World” hardly begins to describe it. There is no legal way for _any_ agency to gather, store and use your DNA without informed consent or a court-issued warrant.
    Apparently to some people, our Constitution is only a yellowed, useless, waste of paper.

  3. who cares we need this to help catch the 15% of the population that does violent crime. this should be federally mandated and all dna should be uploaded to codex, no crime should go cold because a person cant be identified even though dna is present.

    1. “Those who would give up essential Liberty, to purchase a little temporary Safety, deserve neither Liberty nor Safety.” – Benjamin Franklin

      Folks who are unfamiliar with this quote and its meaning, or somehow insist on having their cake while eating it too, would benefit from considering Mr Franklin’s wisdom.

      1. that was like 300 years ago, times have changed, country way more populated. time to take down the 15% clowns that kill multiple people and get away with it, or at least get away with it for a long time.

  4. This is why I told my daughter, after the birth of her first son to turn down the requests to do the genetic testing, and to ignore later follow up requests that she received during progress appts with the pediatrician. Sort of a, later I’ll think about it, response until they stopped asking. I didn’t trust a blood test by the state regarding genetics. I am not a regular conspiracy theorist, but I am a teenager of the 70s and am familiar with the complaints of many, books and books of it, over shady government testing for this and that. No way was my advice over that.

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